close
Join the European Li-Fraumeni Families Foundation
Together we can do much more for the Li-Fraumeni families
My Blog
Description of my blog
mrt
27
SOS, what's your experience?
Posted by: tvdwal |Tagged in: Untagged
Due to the wide range of types of cancer involved with LFS, clinics offer an "SOS" system whereby any symptom that lasts longer than three weeks should be discussed with the specialist cancer genetics clinic. This enables families to allow everyday symptoms that affect the general population to subside but at the same time, to follow up any symptoms that could be significant as part of the syndrome. In particular, any lump in a part of the body that persists for longer than three weeks should be checked. As there may be interaction with irradiation in this syndrome, it is recommended that, if possible, the investigations and treatment use modalities that avoid radiation e.g. MRI or ultrasound and surgery respectively. Sometimes, this is not possible as the best test/treatment may involve x-rays and, in this instance, it is better to make a diagnosis and give the treatment.
What's your experience? Please let us know!
ELFF team!
